MS......Jog on!

Im writing this at the end of the day because I wanted to see how I felt, if I had side effects etc to let everyone who's coming here know what to expect. Its 23.21. First infusion of 6 bottles took 4 hours. Everything was fine until they un hooked me....

Im not really sure how Ive got my days mixed up, but for the record today is Thursday 26 June 2014 and I entered here Monday 16 June so I make today day 11. Yesterday was a day off, mainly spent stressing about business at home which I promised myself...

Wanted to say thanks to all the friends and family including my many MS family members who Ive not known for long, but have become as dear to me and Carol as if you were blood. Your kindness, advice, love and support has really been so overwhelming, you've...

Not a bad nights sleep to be honest, considering 2 of Big Chief Sitting Bulls arrows are sticking out at least 6 inches from my neck. Think the hair net helped,(God I love the hair net!!) holding the arrows in place. A U type cushion also helped, you...

Had our steroids port removed from our arms today and a long tube inserted into the jugular vein for stem cell collection tomorrow and Wednesday. It looks a lot worse than it is, fitting was fine, a little discomfort but the Docs all round seem very gentle...

There's not much to say on these days, stimulation shots at 11pm and 03 am to get the stemmies to move from bone marrow into blood for collection. Began on evening of 20 June,and Ive been told its for 4 dys by the nurses and 5 days by Dr F so who knows....

Forgot to say that yesterday Dr Fedorenko said we start stimulation shots today. These are jabs in the arm and stomach, given twice a night at 11pm and 03am for 4 nights, to stimulate the stem cells to move from the bone marrow into the blood where they...

Didn't post today as basically had the day off. Dr F came in in the morning and said there was no need for concern but he wanted me to have another ultra sound on my liver tomorrow,in order to make sure it was protected during chemo. Too many nights out...

Firstly let me apologise. Im getting messages on this blog and for some reason I can't reply. Im sure its nothing to do with me and my ability (not) but anyway you can get me on Facebook, Stevie Holt, Slept well last night, woke up at 8.45am and had just...

Day 1. We met with Nancy, her sister and brother-in law in the hotel lobby and got 2 cabs to Pirogov. Armed guards parade outside and we were met by Anastasia and allowed through. We met up with Andrea ad Matt, paid our pre-testing fees and was shown...