Top posts
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Collection Day (continued.)
Wanted to say thanks to all the friends and family including my many MS family members who Ive not known for long, but have become as dear to me and Carol as if you were blood. Your kindness, advice, love and support has really been so overwhelming, you've...
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Stem cell collection ports.
Had our steroids port removed from our arms today and a long tube inserted into the jugular vein for stem cell collection tomorrow and Wednesday. It looks a lot worse than it is, fitting was fine, a little discomfort but the Docs all round seem very gentle...
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Correct days! (Day 11)
Im not really sure how Ive got my days mixed up, but for the record today is Thursday 26 June 2014 and I entered here Monday 16 June so I make today day 11. Yesterday was a day off, mainly spent stressing about business at home which I promised myself...
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1 month home. (Day 0+45)
Can't believe what I've just written in title. Day 0+45. Time flies. So I've been home a month and wanted to blog an update, though don't really know where to start! A good tip would be to remember what all previous pioneers say. Recovery really is a...
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Day 0+ 23-Update
Hi Well it certainly seems like its been a while!! Thought I'd let you all know whats been going on in my life. First thing I want to say is regarding Kellie. She was next door to me in Moscow, a great laugh and a warm friendly soul. Why is it only the...
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Day 24 Iso (Cont'd)-Day 25 (Recovery!)
After the news from Dr F yesterday morning, I was elated that it appeared I was on the way. A couple of days to recovery, some immunotherapy and blood works and all being well discharged. Then a recall from the Dr 20 minutes later told me I was coming...
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Day 18, Iso cont'd.
Things will probably settle down for the next week or so now, and I will keep you informed of any gargantuan type developments of course, so I think rather than bore you all I'll say Sayonara for a while. Events of today include 2x 2 litre infusions,...
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Day 15, Rest.
Well another jack-in-the box night. near misses with the pee bottle. Feels like you're gonna break your neck and flood the seas and 3 thimbles full later you're done! What a bummer!! You gotta laugh though. So I thought yesterday was my last day of chemo...
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Day 3. Test Results.
Firstly let me apologise. Im getting messages on this blog and for some reason I can't reply. Im sure its nothing to do with me and my ability (not) but anyway you can get me on Facebook, Stevie Holt, Slept well last night, woke up at 8.45am and had just...
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Day 12. Chemo.
Im writing this at the end of the day because I wanted to see how I felt, if I had side effects etc to let everyone who's coming here know what to expect. Its 23.21. First infusion of 6 bottles took 4 hours. Everything was fine until they un hooked me....
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Dx to Moscow and in between.
So now its March 2011 and Im online searching for something that probably isn't there. In fact, I don't even know what Im looking for! Answers maybe? A cure? Who knows? I do know I felt pretty desperate at that time and soon learnt how low human beings...
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About me! (My favourite subject!!)
My name is Steve Holt, I am 52 years old and I have aggressive primary progressive multiple sclerosis. I am lucky in that I have a wonderful wife and 4 fantastic kids and in a way being diagnosed with this horrible, nasty, debilitating and chronic disease...
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Collection Day.
Not a bad nights sleep to be honest, considering 2 of Big Chief Sitting Bulls arrows are sticking out at least 6 inches from my neck. Think the hair net helped,(God I love the hair net!!) holding the arrows in place. A U type cushion also helped, you...
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1 year post. (Actually 13.5 month!)
Recovery..................Mmmm. It is what they say it is people. A never ending rollercoaster but I think time is one of the important factors here. As I've already said its been difficult. Seems like never ending aches and pains, spasticity and then...
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Spoke to Dr F.
The ongoing saga of my different mri results (Moscow and London) rolls on! After receiving lots of help and advice from fellow pioneers, including from several, "check to see if you have a UTI," I decided to do just that. Apparently having one and MS...
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Follow on from 6 month blog.
If you remember my post 6 month mri in London showed "new minor lesions and recent activity." I emailed Dr F immediately and he replied to send out the mri so they could assess and not to start the chemo infusions London offered. After a long wait this...
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Final Post @+2 years.
I so wish I could say that this is my final post because Im off to live my life happily ever after but sadly thats not the case. After hours of time spent contemplating wether to post or not, I decided its only right to be honest, as I have been throughout...
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9 months today.
Well its 05.15am in London town and guess what-its raining!! Early I know for me to be up and writing but when you type like a man with 1 finger you need an early start in order to try and finish on the same day you started!! Well I've been having a pretty...
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Post 6 month mri.
I haven't posted as much as I intended due to other aspects of life and the bumpy road of recovery! For those that don't know, my name is Steve Holt, I'm a 53 year old Londoner diagnosed with PPMS in March 2011. I am the first British man to undergo hsct...
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Where to start? At the beginning I know but.....
Its been a humid hot day in Moscow today and I have been hooked into a chemo machine receiving my final dose. This ones called Ritixumab and whilst the regular pounds your body, this one gives it the sucker punch!! Prior to putting me on the machine Carol...
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Day 17-Isolation.
Wow an even crazier day at the Pirigrov,Patients from Auz, USA, NZ,UK. There must be 11 here now when there were only 4 when I came in. The 3rd floor is full so some are located on the 2nd. But the smiles and good vibes from everyone here is electric....
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Day 4.
Didn't post today as basically had the day off. Dr F came in in the morning and said there was no need for concern but he wanted me to have another ultra sound on my liver tomorrow,in order to make sure it was protected during chemo. Too many nights out...
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Days 6,7,8,9,10.
There's not much to say on these days, stimulation shots at 11pm and 03 am to get the stemmies to move from bone marrow into blood for collection. Began on evening of 20 June,and Ive been told its for 4 dys by the nurses and 5 days by Dr F so who knows....
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Day 5.
Forgot to say that yesterday Dr Fedorenko said we start stimulation shots today. These are jabs in the arm and stomach, given twice a night at 11pm and 03am for 4 nights, to stimulate the stem cells to move from the bone marrow into the blood where they...
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Yesterday.
I honestly thought my final blog would have been yesterday, but things happened beyond anyones control and I spent most of the day on 2 cleansing drips, cleaning my blood, body after the effects of the previous day. Today, 16/07/2014, exactly 1 month...